Archive for Jessica Cerretani
Cerebral palsy hasn’t stopped Irvin from living large
Irvin, now 18, became fascinated with sports mascots when he was a little kid. What did they do, and could he do that too? Anytime he had an appointment at the Cerebral Palsy and Spasticity Center at Boston Children’s Hospital, he and his mother would stop by Fenway Park to visit Wally, mascot of the ... Read More about Cerebral palsy hasn’t stopped Irvin from living large
‘Another level of care’: Second opinion solves Joey’s rare urologic condition
When Max and Shana arrived at Boston Children’s Hospital last year with their young son, Joey, their care team “made us feel a lot less special,” says Max. “And that was a great thing.” Joey was born with megacystic-megaureter syndrome, a urinary tract anomaly that is caused by high-grade vesicoureteral reflux, or the backward flow ... Read More about ‘Another level of care’: Second opinion solves Joey’s rare urologic condition
All eyes on retinoblastoma: How Lyla and her mom are helping change lives
Meghan Landry firmly believes that art saved her daughter Lyla’s life. Now, she hopes to leverage the power of creativity to help support other kids like Lyla, who was diagnosed with retinoblastoma at 18 months old. Meghan, who lived in Florida at the time, was waiting with Lyla for a routine pediatrician appointment when she ... Read More about All eyes on retinoblastoma: How Lyla and her mom are helping change lives
‘Life is so much better now’: Ethan finds treatment for mixed germ cell brain tumor
Ethan Winchenbach was playing with his dogs when he first noticed that something was off. “My vision changed, but only when I looked down,” he remembers. “It was really disorienting.” His mother, Becky, who is a nurse, knew immediately that something wasn’t right. When the symptoms didn’t improve, she made him an appointment with his ... Read More about ‘Life is so much better now’: Ethan finds treatment for mixed germ cell brain tumor
Studies pinpoint risk factors for complications of pediatric intestinal failure
Pediatric intestinal failure occurs when patients lack the amount of intestine necessary for growth and development. As advances in treatment have led to better survival rates for children with short bowel syndrome and other forms of intestinal failure, the team at Boston Children’s Center for Advanced Intestinal Rehabilitation (CAIR) is studying factors that affect quality ... Read More about Studies pinpoint risk factors for complications of pediatric intestinal failure
Not just another patient: Care for midaortic syndrome that’s ‘handcrafted’ for Iris
This past July, Iris Huot, her older sister, Audrey, and their parents, Jessica and Austin, gathered around their dining room table. To an outsider, it might seem like an ordinary dinner, but for the Huots, it was a moment of perspective — and gratitude. “It was the first time in eight weeks that we had ... Read More about Not just another patient: Care for midaortic syndrome that’s ‘handcrafted’ for Iris
Biko’s legacy: Mom honors her son through water safety awareness
Biko Mangcu was “a big bright light,” says his mother, Sipho. Everyone in his Cambridge, Massachusetts, neighborhood knew him. His big brown eyes and wide smile were featured in advertising that still adorns toy packaging. At school, his teachers and classmates called him “the mayor.” “He was so full of love and joy,” says Sipho. ... Read More about Biko’s legacy: Mom honors her son through water safety awareness
Virtual visits give Weston time to grow and thrive
For many kids and parents, staying home during the COVID-19 pandemic was a challenge. But for Weston Mahady and his family, social distancing was just what the doctor ordered. The slowed-down pace, time spent together — and access to virtual appointments with Boston Children’s specialists — allowed Weston to make developmental strides that once hadn’t ... Read More about Virtual visits give Weston time to grow and thrive
Lifechanging surgery brings Ann-Raleigh relief from VUR — and some new ‘besties’
When Ann-Raleigh Murthy travels to Boston from her home in Louisiana, she has a list of “must-dos.” Among the highlights: Ride the swan boats in the Public Garden, swing by her favorite chocolate shop, go shopping — and visit with Dr. Carlos Estrada, Boston Children’s urologist-in-chief. Dr. Estrada, along with neurosurgeon Dr. Benjamin Warf, “are two ... Read More about Lifechanging surgery brings Ann-Raleigh relief from VUR — and some new ‘besties’
‘A picture-perfect life’: Makayla is thriving with OEIS syndrome
On a sunny day this spring, Makayla Brisson was on a mission: to find the two bunny rabbit sculptures in the rooftop garden of Boston Children’s Hale Family Building. As much fun as she was having, Makayla was distracted: She was anxiously waiting for her best friend, Aubree. And as Aubree and her parents entered ... Read More about ‘A picture-perfect life’: Makayla is thriving with OEIS syndrome