Archive for pulmonary vein stenosis
From Pakistan to Boston: Faiz finally found help for his complex heart condition
Don’t let his shy smile fool you. In his hometown of Lahore, Pakistan, 6-year-old Muhammad Butt is known by the nickname “Faiz the fighter.” Faiz had long defied the predictions of local doctors who said the heart surgery he needed would be complicated and instead advised his parents to enjoy the time they had with ... Read More about From Pakistan to Boston: Faiz finally found help for his complex heart condition
The brightest rainbow follows the darkest storm: Our PVS journey
Caroline is our rainbow baby, born after the loss of another child, the light and color arising after a storm passes. A rainbow baby lifts a family in desperate need of lifting. It is a beautiful thing that I hope you never experience. Caroline was born on Dec. 10, 2015. Just three months later, my ... Read More about The brightest rainbow follows the darkest storm: Our PVS journey
Two decades of innovation in pulmonary vein stenosis
Over the past 20 years, the Pulmonary Vein Stenosis Program at Boston Children’s Hospital has been crafting an innovative strategy in its approach to pulmonary vein stenosis (PVS) based on a new way of thinking about this rare and unusual disease. “The breakthrough came in realizing that PVS is not like other types of congenital heart disease,” says cardiologist Kathy ... Read More about Two decades of innovation in pulmonary vein stenosis
Trial shows chemotherapy is helping kids live with pulmonary vein stenosis
Pulmonary vein stenosis (PVS) is a rare disease in which abnormal cells build up inside the veins responsible for carrying oxygen-rich blood from the lungs to the heart. It restricts blood flow through these vessels, eventually sealing them off entirely if left untreated. Typically affecting young children, the most severe form of PVS progresses very quickly ... Read More about Trial shows chemotherapy is helping kids live with pulmonary vein stenosis