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Your destination for kids' health

  • Bringing order to disorder: Jhullian Alston, PhD

  • Helping manage ‘sensitive issues’: How our psychosocial team helps kids with urologic concerns

    When community is as important as the science: Olúmídé Fagboyegun

    Two rising stars in kidney genetics: Nina Mann and Amar Majmundar

Colleen Dansereau, the Gene Therapy Program's senior director of clinical operations.

In a thriving gene therapy program, nursing leadership is the driving force

Clinical Care, People
Gene therapy was made possible by decades of technological advances. But to execute gene therapy at scale? That would not be possible without the foresight, organization, and innovation of nursing leadership at Boston Children’s Hospital. The gene therapy implementation framework they have built has become a gold standard for the field. Founded in 2010, the ... Read More about In a thriving gene therapy program, nursing leadership is the driving force
Tagged: adrenoleukodystrophy, blood disorder, car t-cell therapy, gene therapy, hemophilia, leukemia, muscular dystrophy, nursing, sickle cell disease, spinal muscular atrophy
A teen patient in consultation with a health care professional.

Medical care for youth with neurodevelopmental disabilities: A call for change

Clinical Care, Ethics/Policy
According to national data, one in six children has a neurodevelopmental disability (NDD) such as autism, intellectual disability, or ADHD. Their medical care is often inadequate, sometimes leaving conditions untreated and neglecting preventive care — with poorer outcomes as the result. Clinicians may not take time to communicate with children, teens, and young adults with ... Read More about Medical care for youth with neurodevelopmental disabilities: A call for change
Tagged: ADHD, autism, autism spectrum disorder, developmental medicine, health equity, intellectual disability, policy
Brielle Ferguson, PhD

Unraveling the secret to attention, one brain cell at a time: Brielle Ferguson, PhD

People, Research
In college, Dr. Brielle Ferguson was initially drawn to psychology. Witnessing the impact of schizophrenia on a family member, she was surprised how little was known about the condition. She majored in cognitive science, but she wanted to go deeper and understand what happens in the brain. Taking a required course in neuroscience, she thought, ... Read More about Unraveling the secret to attention, one brain cell at a time: Brielle Ferguson, PhD
Tagged: ADHD, autism spectrum disorder, epilepsy, neuroscience, research rising stars, schizophrenia
A smiling Kellie Machlus overseeing the work of a lab member.

The clot thickens: Kellie Machlus, PhD

People, Research
Part of an ongoing series profiling researchers at Boston Children’s Hospital. Platelets are the bandages of our blood, forming clots when we sustain an injury. Yet little is known about how they’re made, and there are no drugs that can immediately and directly trigger their production. Boston Children’s Hospital researcher Kellie Machlus, PhD, (@theclotthickens) couldn’t ... Read More about The clot thickens: Kellie Machlus, PhD
Tagged: blood, blood disorder, diet, hematology, research rising stars, vascular biology
a laptop is open showing an virtual bedroom where a child is in bed and there is a table with medical equipment.

New online peritoneal dialysis simulator gives the power of education to patients

Clinical Care, Transforming Tomorow
For years, patients who need peritoneal dialysis, a form of home-based treatment for kidney disease, have had to educate themselves about the approach. “Many families have never heard of peritoneal dialysis prior to their child’s diagnosis,” shares Dr. Deborah Stein, a nephrologist in the Division of Nephrology at Boston Children’s Hospital. The idea of peritoneal ... Read More about New online peritoneal dialysis simulator gives the power of education to patients
Tagged: complex care, nephrology, research
Dosh Whye portrait

Perfecting the craft of modeling disease in stem cells: Dosh Whye

People, Research
Part of an ongoing series profiling researchers at Boston Children’s Hospital. Dosh Whye has always wanted to make peoples’ lives better, but he never imagined that tending to stem cells in a lab seven days a week would be the way he would do it. Now, as an assistant director of the Human Neuron Core ... Read More about Perfecting the craft of modeling disease in stem cells: Dosh Whye
Tagged: neuroscience, organoids, research rising stars, spina bifida, stem cells

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