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  • A true hero’s journey: How a team approach helped Wolfie overcome pancreatitis 

  • Four things you should know about MAPCAs treatment

    A case for Kennedy — and for rapid genomic testing in every NICU

    The right decision at the right time: Choosing pediatric thyroidectomy

A young boy is dressed in blue surgical scrubs.

After surgeries to treat HLHS, Carter is healthy and happy at home in Florida

Patient Stories
Carter Miller loves action. The 4-year-old Florida resident enjoys riding on golf carts and flying high on swing sets.  It’s the kind of fun that make his parents, Andrea and Bo, appreciate where the family is now. Nearly five years ago, they were worried after a prenatal diagnosis showed Carter would be born with a ... Read More about After surgeries to treat HLHS, Carter is healthy and happy at home in Florida
Tagged: fetal cardiology, Fetal Care and Surgery Center, heart, heart center, heart patient, hlhs, single ventricle defects, surgery
A preteen boy stands with his father in front of a golf cart

‘We never stopped believing’: Benny’s journey with liver cancer

Patient Stories
Earlier this year, 12-year-old Benny helped his dad, Ben, build a deck around his family’s pool. Moving boards, handing each other tools — DIY projects are a rite of passage for many kids and their parents. But the experience was even more meaningful for Benny and Ben. “I got to enjoy that kind of father-son moment ... Read More about ‘We never stopped believing’: Benny’s journey with liver cancer
Tagged: liver cancer, transplant
A 12-year old boy smiles and waves from a pedal kayak.

Adam takes a pause from his active life for non-ossifying fibroma

Patient Stories
Adam was 11 in early 2024 when he and his bike slid under a downed tree. Such events aren’t unusual for Adam, who finds plenty of opportunities to test the limits of gravity near his home in Southern Maine. “Adam is the epitome of activity,” says his mother, Jessica. After the bike incident, however, he ... Read More about Adam takes a pause from his active life for non-ossifying fibroma
Tagged: bone tumors, orthopedics
A baby girl with a bow on her head, sitting in the grass with a blue building in the background.

Choosing fetoscopic spina bifida care for Hadley

Patient Stories
When Katie and Derek learned in 2024 that their daughter Hadley would be born with spina bifida, they quickly set out to find the best care available. And as so often happens in parenting, their most important decision was to trust their instincts. Doing so led them to be among the first in New England ... Read More about Choosing fetoscopic spina bifida care for Hadley
Tagged: Fetal Care and Surgery Center, pregnancy, spina bifida
A preteen boy holding a small dog.

A world of difference: Why Noah traveled from Florida for multiple sclerosis care

Patient Stories
When Noah started having headaches four years ago, his mom, Jonda, initially wondered if it was a classic kid ruse. “I thought maybe he was trying to get out of doing chores,” she remembers. But when the headaches got worse and even his eyes hurt, she brought him to their local emergency room in Florida. ... Read More about A world of difference: Why Noah traveled from Florida for multiple sclerosis care
Tagged: autoimmune disease, multiple sclerosis, neuroimmunology
Two young boys wearing superhero capes

An unbreakable bond: Brothers turn medical complexities into superpowers

Patient Stories
“Look! Is that one JetBlue? I think that one’s Delta!” Running through the grass, climbing on the jungle gym, and watching planes take off and land at nearby Logan Airport: Castle Island in South Boston is Patrick and Teddy’s happy place. The brothers, ages 4 and 3 respectively, are almost as obsessed with airplanes as ... Read More about An unbreakable bond: Brothers turn medical complexities into superpowers
Tagged: aerodigestive, bronchopulmonary dysplasia, feeding therapy, g tube, motility

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