Knowing what life is worth: I am an adult heart patient and much more
Most of the children showed off a favorite toy. Some brought items that were meaningful to their family or culture. When I got to the front of my kindergarten class, my hands were empty. “My show-and-tell is…me,” I exclaimed as I pulled up my shirt and bared my chest to an audience of shocked five-year-olds ... Read More about Knowing what life is worth: I am an adult heart patient and much more
“A setback for a comeback”: Brody perseveres with Paget-Schroetter Syndrome
Baseball has been part of Brody Walsh’s story from the very start. Now 19 and a college sophomore, Brody pitches for the Thomas College Terriers baseball team. But his path to this point has not been easy, to say the least: Just two years ago, a serious medical condition threatened his pitching career. Faced with ... Read More about “A setback for a comeback”: Brody perseveres with Paget-Schroetter Syndrome
Tough cookie: Steroid therapy helps Alessandra thrive with Diamond-Blackfan anemia
Two-year-old Alessandra is many things. She’s sweet, happy, curious, and, according to her parents, Ralph and Irma, a budding food critic. “She’s a food snob!” Ralph says, laughing. “She recognizes the expensive pasta, the homemade versus store-bought food.” But above all, Alessandra is resilient, and her parents have known that from the very start: At ... Read More about Tough cookie: Steroid therapy helps Alessandra thrive with Diamond-Blackfan anemia
The exciting life of Jack, the first successful fetal cardiac intervention patient
Jack Miller sometimes reaches out to his cardiologist, Dr. Wayne Tworetzky, with updates on his life. Recently, their conversations centered around Jack pushing himself while training to be a police officer. The physical endurance Jack needed for training was another example of how the fetal cardiac intervention that Dr. Tworetzky and the specialists of the Fetal Cardiology Program performed on ... Read More about The exciting life of Jack, the first successful fetal cardiac intervention patient
Mark’s winning pass with cochlear implants
Mark Bradshaw wanted to break out of his parents’ protective shell — as many teens do when they start pushing for more independence. Mark’s parents, however, hesitated. The issue? Mark, who is 15 and has had cochlear implants since early childhood, wanted to play tackle football. Access to sound and language Mark was diagnosed with ... Read More about Mark’s winning pass with cochlear implants
Jackie’s dreams of playing professional soccer back on track after ACL surgery
From her dorm in Newcastle, England, Jackie Zapata can hear fans roaring in the soccer stadium a few blocks away. Soccer is a major pastime in her adopted home. “The city gets amped up anytime there’s a game,” she says. “It’s a huge part of the culture here.” This enthusiasm makes Newcastle a good place ... Read More about Jackie’s dreams of playing professional soccer back on track after ACL surgery