Seeing what’s possible: Pediatric stroke doesn’t slow James down
James Veling is only 6 years old, but he has a whole bag of medals. He’s won them by placing in various Spartan obstacle races and 5Ks, sometimes besting multiple adults in the process. James is following in the footsteps of his father, David — literally. “I started running a few years ago, partly as ... Read More
From Alabama for answers: Adella’s thyroid journey
She may only be 12 years old, but Adella Jackson has already expanded her family’s perspective. “She’s broadened our horizons,” says her mother, Cindy. “If it wasn’t for Adella, we never would have gotten to visit Boston, for example.” The Jacksons, who hail from Alabama, have loved exploring the city’s rich history and art museums ... Read More
Doing everything possible for Gabby: A team approach to short bowel syndrome
Gabriel “Gabby” Lopez loves everything hot and spicy. “He will eat a ghost pepper without hesitation,” says his mother, Mayra. “He eats more spicy food than a grown man.” It’s an impressive feat, not only because Gabby is just 3 years old, but also because he has spent the majority of his life receiving his ... Read More
Hemophilia A gene therapy paves the way for a life with less pain
Matthew Harrington, a 35-year-old oil-field worker from Douglas, Wyoming, knows pain. Born with hemophilia A, a rare condition in which the blood doesn’t clot properly, Matt’s body — both inside and outside — has difficulty stopping bleeding. He has what’s considered the most severe form of hemophilia, characterized by frequent bleeding episodes, particularly in the ... Read More
A complex repair for Ruby’s heart
When Rebecca and Michael Stewart learned their baby would be born with a congenital heart condition, they reacted as any expectant parents would, with shock and fear. But they quickly moved into action, focused on finding the best care for their daughter before her birth. “At about 22 weeks into my pregnancy, Ruby was diagnosed ... Read More
Treatment for anorectal malformation gives Steven freedom and confidence
Steven York has “come a very long way,” says his mother, Beth — both literally and figuratively. In just seven years, he’s traveled from China to a new home in South Carolina, made multiple visits to Boston, and undergone a series of complex but ultimately life-changing surgical procedures. According to his adoption and hospital notes, ... Read More