Four things you should know about MAPCAs treatment
As the first grandchild in her family, Hannah Homan is in demand for frequent visits. She was also the focus of attention last month when she turned 1. It’s been happy times for her parents, Amanda and Brian, but they couldn’t see that far ahead early last year. They had received a worrisome heart diagnosis ... Read More about Four things you should know about MAPCAs treatment
A case for Kennedy — and for rapid genomic testing in every NICU
Kennedy was born in August 2025 after what her parents, John and Diana, describe as an uneventful pregnancy. Soon after delivery, though, she struggled to breathe and feed. What followed was a series of hospital stays, a complex diagnosis, and a glimpse into how rapid genomic testing can deliver answers that guide critical decisions and ... Read More about A case for Kennedy — and for rapid genomic testing in every NICU
The right decision at the right time: Choosing pediatric thyroidectomy
In some ways, siblings Adelaide and Declan couldn’t be more different. Nine-year-old Adelaide is creative, artistic, and nurturing. Declan, 7, is “our little athlete,” says his father, Todd. “Soccer, baseball — he’s always all in.” But the two also have something big in common: they share a rare genetic condition called multiple endocrine neoplasia, type 2. ... Read More about The right decision at the right time: Choosing pediatric thyroidectomy
After surgeries to treat HLHS, Carter is healthy and happy at home in Florida
Carter Miller loves action. The 4-year-old Florida resident enjoys riding on golf carts and flying high on swing sets. It’s the kind of fun that make his parents, Andrea and Bo, appreciate where the family is now. Nearly five years ago, they were worried after a prenatal diagnosis showed Carter would be born with a ... Read More about After surgeries to treat HLHS, Carter is healthy and happy at home in Florida
‘We never stopped believing’: Benny’s journey with liver cancer
Earlier this year, 12-year-old Benny helped his dad, Ben, build a deck around his family’s pool. Moving boards, handing each other tools — DIY projects are a rite of passage for many kids and their parents. But the experience was even more meaningful for Benny and Ben. “I got to enjoy that kind of father-son moment ... Read More about ‘We never stopped believing’: Benny’s journey with liver cancer
Adam takes a pause from his active life for non-ossifying fibroma
Adam was 11 in early 2024 when he and his bike slid under a downed tree. Such events aren’t unusual for Adam, who finds plenty of opportunities to test the limits of gravity near his home in Southern Maine. “Adam is the epitome of activity,” says his mother, Jessica. After the bike incident, however, he ... Read More about Adam takes a pause from his active life for non-ossifying fibroma