Pushing the envelope for Eoin: Our family’s experience with esophageal atresia
When I recently brought my son, Eoin, to Boston Children’s for an appointment, we ran into Dr. Farokh Demehri on the bridge from the parking garage. We smiled, laughed, and talked about how nice it was to see each other. It was a simple meeting, but one I had dreamed about for so long: I ... Read More about Pushing the envelope for Eoin: Our family’s experience with esophageal atresia
A model patient: Alexia’s triumph over moyamoya disease
If you’re lucky enough to get time on Alexia’s packed schedule, you’re in the company of a motivated and ambitious young woman who — in the face of a scary diagnosis — shows others they can do anything they put their mind to. From subtle symptoms to diagnosis Alexia’s fight against moyamoya disease, a rare ... Read More about A model patient: Alexia’s triumph over moyamoya disease
From Florida to Boston and back again: Reagan’s liver transplant journey
Reagan, 18, is gearing up for her freshman year of college this fall, and she has a solid idea about her future career. “I hope to become a transplant nurse or a child life specialist,” she shares with a smile. Her inspiration to enter this field of medicine comes from her experiences with the care ... Read More about From Florida to Boston and back again: Reagan’s liver transplant journey
‘It’s worth it’: Dianna finds support in managing her chronic pain
For Dianna Aguiar, 18, playing tennis, practicing yoga, and going for walks with her dog aren’t just fun ways to stay active. They’re powerful proof of how far she’s come in her journey with chronic pain. Although Dianna has had juvenile arthritis since she was a child, she began experiencing new back and hip pain ... Read More about ‘It’s worth it’: Dianna finds support in managing her chronic pain
From pain to purpose: An update on Dylan’s traumatic brain injury
We first introduced you to Dylan four years ago, when a traumatic brain injury led him to the Department of Neurosurgery for care and instilled in him a love of medicine. We caught up with the college senior this summer to see where life has taken him since he started an internship with the team ... Read More about From pain to purpose: An update on Dylan’s traumatic brain injury
Calm through the storm: Connor’s ulcerative colitis journey
When you meet Connor today, he’s a confident 13-year-old who is incredibly laid back when he speaks about his complex medical condition. This school year, he plans on playing basketball and running track. “I like hanging out with my friends and traveling — now I can do all these things without being in pain.” However, ... Read More about Calm through the storm: Connor’s ulcerative colitis journey
Defying the odds: Cruise’s triumph against cavernous malformations and debilitating headaches
As a toddler, Cruise — now 13 — faced a rare cancer diagnosis that came with an 11 percent chance of survival. But with his trademark resilience and strength of spirit, Cruise defied the daunting odds and beat his cancer. The battle left its mark though — in the form of cavernous malformations in his ... Read More about Defying the odds: Cruise’s triumph against cavernous malformations and debilitating headaches
Cerebral palsy hasn’t stopped Irvin from living large
Irvin, now 18, became fascinated with sports mascots when he was a little kid. What did they do, and could he do that too? Anytime he had an appointment at the Cerebral Palsy and Spasticity Center at Boston Children’s Hospital, he and his mother would stop by Fenway Park to visit Wally, mascot of the ... Read More about Cerebral palsy hasn’t stopped Irvin from living large
‘Another level of care’: Second opinion solves Joey’s rare urologic condition
When Max and Shana arrived at Boston Children’s Hospital last year with their young son, Joey, their care team “made us feel a lot less special,” says Max. “And that was a great thing.” Joey was born with megacystic-megaureter syndrome, a urinary tract anomaly that is caused by high-grade vesicoureteral reflux, or the backward flow ... Read More about ‘Another level of care’: Second opinion solves Joey’s rare urologic condition
Family first: Nolan and Uncle Jon’s living donor kidney transplant
Nolan and his uncle Jon are both tall and blonde, but they now have something more in common: The two have an unbreakable bond, thanks to a selfless —and lucky — gift that changed Nolan’s life forever. The first year after Nolan was born, his primary care physician ran some blood work to try to ... Read More about Family first: Nolan and Uncle Jon’s living donor kidney transplant