Clinical Care
“Observe. Be open.”: How Boston Children’s nurses are changing the future of global health
Ashley Birch, MSN, CPNP, a Boston Children’s pediatric nurse practitioner and Global Nursing fellow, didn’t expect a trash bag to become a critical tool in her global health toolkit. In a hospital in Uganda, caring for a baby with spina bifida, Ashley improvised and created a protective covering over a wound using what she thought ... Read More about “Observe. Be open.”: How Boston Children’s nurses are changing the future of global health
Research
Unveiling the hidden impact of moyamoya disease: Brain injury without symptoms
Moyamoya disease — a rare, progressive condition that narrows the brain’s blood vessels — leads to an increased risk of stroke and other neurological conditions. Doctors treating children with moyamoya often face difficult decisions about treatment, notably deciding whether to perform revascularization, a surgery to bypass the narrowed blood vessels and restore blood flow. A ... Read More about Unveiling the hidden impact of moyamoya disease: Brain injury without symptoms
Patient Stories
Tough cookie: Steroid therapy helps Alessandra thrive with Diamond-Blackfan anemia
Two-year-old Alessandra is many things. She’s sweet, happy, curious, and, according to her parents, Ralph and Irma, a budding food critic. “She’s a food snob!” Ralph says, laughing. “She recognizes the expensive pasta, the homemade versus store-bought food.” But above all, Alessandra is resilient, and her parents have known that from the very start: At ... Read More about Tough cookie: Steroid therapy helps Alessandra thrive with Diamond-Blackfan anemia
Patient Stories
The exciting life of Jack, the first successful fetal cardiac intervention patient
Jack Miller sometimes reaches out to his cardiologist, Dr. Wayne Tworetzky, with updates on his life. Recently, their conversations centered around Jack pushing himself while training to be a police officer. The physical endurance Jack needed for training was another example of how the fetal cardiac intervention that Dr. Tworetzky and the specialists of the Fetal Cardiology Program performed on ... Read More about The exciting life of Jack, the first successful fetal cardiac intervention patient
Patient Stories
Mark’s winning pass with cochlear implants
Mark Bradshaw wanted to break out of his parents’ protective shell — as many teens do when they start pushing for more independence. Mark’s parents, however, hesitated. The issue? Mark, who is 15 and has had cochlear implants since early childhood, wanted to play tackle football. Access to sound and language Mark was diagnosed with ... Read More about Mark’s winning pass with cochlear implants
Research
A new druggable cancer target: RNA-binding proteins on the cell surface
In 2021, research led by Ryan Flynn, MD, PhD, and his mentor, Nobel laureate Carolyn Bertozzi, PhD, opened a new chapter in biology, characterizing a new kind of player on the cell surface: glycoRNAs. Extending this discovery recently in Cell, Flynn and colleagues showed that glycoRNAs form highly organized clusters with RNA-binding proteins on the ... Read More about A new druggable cancer target: RNA-binding proteins on the cell surface
Patient Stories
Jackie’s dreams of playing professional soccer back on track after ACL surgery
From her dorm in Newcastle, England, Jackie Zapata can hear fans roaring in the soccer stadium a few blocks away. Soccer is a major pastime in her adopted home. “The city gets amped up anytime there’s a game,” she says. “It’s a huge part of the culture here.” This enthusiasm makes Newcastle a good place ... Read More about Jackie’s dreams of playing professional soccer back on track after ACL surgery
Patient Stories
Understanding and treating Mason’s congenital nevus
Kim and Ryan noticed their son’s birthmark almost immediately after he was born. They knew birthmarks were common, but Mason’s was different — it covered a large portion of his right leg and calf. Their doctor classified it as a giant congenital melanocytic nevus and suggested they monitor it closely, but that didn’t answer all ... Read More about Understanding and treating Mason’s congenital nevus
Patient Stories
Unique data revealed just when Mickey’s heart doctors could operate
When Mikolaj “Mickey” Karski’s family traveled from Poland to Boston to get him heart care, they weren’t thinking about pressure-volume (PV) loops. His parents simply wanted him to receive treatment for a complex condition that he couldn’t get back home. Little did they know the mathematical computational power of those PV loops would play a ... Read More about Unique data revealed just when Mickey’s heart doctors could operate
Patient Stories
No limitations: How Flora found answers for MOG antibody disease
Flora Ringler’s fifth birthday didn’t turn out as she had hoped. She and her family were vacationing in New Hampshire last year when she started feeling tired. But she wasn’t just worn out from celebrating: She also developed a bad headache and started throwing up. Concerned, her mom, Maureen, contacted a pediatrician, who thought she ... Read More about No limitations: How Flora found answers for MOG antibody disease