Archive for colorectal and pelvic malformations
Finally heard: How finding a doctor who listened helped change Carter’s life
In some ways, Carter Sousa is like any other 13-year-old: He’s obsessed with videos, loves animals, and enjoys hanging out with his friends. But for much of his childhood, Carter and his parents found themselves struggling with a frustrating and embarrassing problem that seemed to have no clear solution. Soon after he was born, Carter ... Read More
Answers for Aubree: Finding support for OEIS
Michelle and Stephen Strickland are used to having questions about their infant daughter, Aubree’s, health. After all, Aubree was born last year with a rare and complex condition called cloacal exstrophy, or OEIS syndrome, in which many of the internal abdominal structures and organs are exposed outside the body. OEIS can include an omphalocele, rectal ... Read More
Staff Spotlight: Meet Paula Cruz
Paula Cruz is a registered nurse in the Colorectal and Pelvic Malformation Center at Boston Children’s Hospital. The center treats children with complex colorectal and pelvic conditions, including anorectal malformations, cloacal deformities, and cloacal exstrophy. In addition to treatments such as surgical procedures and medical management, the center offers a bowel management program for children who are ... Read More
Urodynamics testing: What to expect
If your child has been diagnosed with a colorectal or pelvic malformation, they may also experience urological problems such as vesicoureteral reflux, hydronephrosis, or neurogenic bladder. These conditions can make it difficult to store or empty urine properly, leading to incontinence and accidents. “For these reasons, a urologist is often involved in the care of ... Read More