Archive for oeis
‘A picture-perfect life’: Makayla is thriving with OEIS syndrome
On a sunny day this spring, Makayla Brisson was on a mission: to find the two bunny rabbit sculptures in the rooftop garden of Boston Children’s Hale Family Building. As much fun as she was having, Makayla was distracted: She was anxiously waiting for her best friend, Aubree. And as Aubree and her parents entered ... Read More about ‘A picture-perfect life’: Makayla is thriving with OEIS syndrome
Jada’s story: After cloacal exstrophy repair, an unexpected gift
Koda Wilder Ladchuk was born slightly premature, healthy, and happy. But this isn’t just a story about 4-month-old Koda. It’s also a story about his mother, Jada, and an incredible outcome no one could have predicted — not even Jada herself. Jada, now 25, was born with cloacal exstrophy (also known as OEIS syndrome), a ... Read More about Jada’s story: After cloacal exstrophy repair, an unexpected gift
Answers for Aubree: Finding support for OEIS
Michelle and Stephen Strickland are used to having questions about their infant daughter, Aubree’s, health. After all, Aubree was born last year with a rare and complex condition called cloacal exstrophy, or OEIS syndrome, in which many of the internal abdominal structures and organs are exposed outside the body. OEIS can include an omphalocele, rectal ... Read More about Answers for Aubree: Finding support for OEIS